Tuesday, December 7, 2010
CCFA
Every day, IBD threatens dreams for a normal life. But thanks to people like you, the Crohn's & Colitis Foundation of America (CCFA) offers patients hope.
Today, I'd like to invite you to renew your support by becoming a member of CCFA.
As you probably know – and as Daniel can attest – the challenges of living with Crohn's or colitis can be fierce. That's why your membership is so vitally important – partnering with CCFA is the easiest and surest way to make a real difference to the 1.4 million Americans living with Crohn's and colitis.
Since their founding, CCFA has given more than $150 million to researchers across the globe. They've played a role in every major scientific breakthrough in IBD, including the discovery of the first gene for Crohn's disease. We couldn't have had such an impact without friends like you.
But despite our progress, there's so much more work left to be done and we need your help.
When you join CCFA, you'll not only continue to fund crucial research, but you'll also support programs that improve the lives of those affected by IBD.
From creating valuable publications for patients and health care professionals... to teleconferences that connect patients to up-to-the-minute resources... to our CCFA online community where people share their stories and find out, often for the first time, that they're not alone... your support will touch the lives of so many people.
I believe treatment breakthroughs are up ahead – but we'll reach them sooner if everyone joins the effort. Please become a member of CCFA today. Daniel and countless others who dare to dream will be grateful!
P.S. Daniel realized his dream and became firefighter. Help ensure that more people with IBD live the lives they were meant to. Become a member of CCFA today!
At CCFA, we're paving the way to advances in treatment – and, one day, a cure. You can help us get there.
Crohns & Colitis Foundation of America | www.ccfa.org
888.MY.GUT.PAIN (888.694-8872)
Today, I'd like to invite you to renew your support by becoming a member of CCFA.
As you probably know – and as Daniel can attest – the challenges of living with Crohn's or colitis can be fierce. That's why your membership is so vitally important – partnering with CCFA is the easiest and surest way to make a real difference to the 1.4 million Americans living with Crohn's and colitis.
Since their founding, CCFA has given more than $150 million to researchers across the globe. They've played a role in every major scientific breakthrough in IBD, including the discovery of the first gene for Crohn's disease. We couldn't have had such an impact without friends like you.
But despite our progress, there's so much more work left to be done and we need your help.
When you join CCFA, you'll not only continue to fund crucial research, but you'll also support programs that improve the lives of those affected by IBD.
From creating valuable publications for patients and health care professionals... to teleconferences that connect patients to up-to-the-minute resources... to our CCFA online community where people share their stories and find out, often for the first time, that they're not alone... your support will touch the lives of so many people.
I believe treatment breakthroughs are up ahead – but we'll reach them sooner if everyone joins the effort. Please become a member of CCFA today. Daniel and countless others who dare to dream will be grateful!
P.S. Daniel realized his dream and became firefighter. Help ensure that more people with IBD live the lives they were meant to. Become a member of CCFA today!
At CCFA, we're paving the way to advances in treatment – and, one day, a cure. You can help us get there.
Crohns & Colitis Foundation of America | www.ccfa.org
888.MY.GUT.PAIN (888.694-8872)
Saturday, December 4, 2010
Crohns Disease claimed the life of another.
In memory of Roger McIntire my neighbor, my friend.
Roger was 62 when diagnosed with Crohns. The last time my husband and I saw him, he was loading up the last of his belongings. He could not work because Crohns made him so sick and forced him into retirement.
He was so frail and lost so much weight. In talking with his wife Sharon during their move, last year she told us they lost their business, home, and were in bankruptcy. The stress alone had to have been too much without adding the horrible complications of Crohns.
Roger was the most caring, sweet man I ever met. We loved him so much and missed him and Sharon everyday. Their house remains empty but our memories and thoughts remind us of their good nature on a constant basis.
They gave us a nice touch lamp years ago. Yesterday it went on by itself. It never did that before. It also went off by itself. Sharon called me today to tell me Roger passed away. She said he really loved us and I know and believe he said goodbye personally. The light he gave us has now been dimmed but his light will remain in our hearts forever.
The most devastating thoughts I have are the "way" he had to spend his last days. We all know the horrible hospital ordeal when we have our visits. You are stripped of any dignity you have unlike other illnesses. The pain, not able to eat, drink or have control is no way to leave this earth.
Roger is in a better place free of the relentless hold of Crohns Disease. I pray for a cure and we all need to raise awareness now.
Rest in peace my dear friend.
Roger was 62 when diagnosed with Crohns. The last time my husband and I saw him, he was loading up the last of his belongings. He could not work because Crohns made him so sick and forced him into retirement.
He was so frail and lost so much weight. In talking with his wife Sharon during their move, last year she told us they lost their business, home, and were in bankruptcy. The stress alone had to have been too much without adding the horrible complications of Crohns.
Roger was the most caring, sweet man I ever met. We loved him so much and missed him and Sharon everyday. Their house remains empty but our memories and thoughts remind us of their good nature on a constant basis.
They gave us a nice touch lamp years ago. Yesterday it went on by itself. It never did that before. It also went off by itself. Sharon called me today to tell me Roger passed away. She said he really loved us and I know and believe he said goodbye personally. The light he gave us has now been dimmed but his light will remain in our hearts forever.
The most devastating thoughts I have are the "way" he had to spend his last days. We all know the horrible hospital ordeal when we have our visits. You are stripped of any dignity you have unlike other illnesses. The pain, not able to eat, drink or have control is no way to leave this earth.
Roger is in a better place free of the relentless hold of Crohns Disease. I pray for a cure and we all need to raise awareness now.
Rest in peace my dear friend.
Monday, February 1, 2010
Crohns Disease News and Views
Welcome to your information center for Crohns Disease.
If you are newly diagnosed, subscribe to this blog for the latest
developments in the cure and management of Crohns Disease.
Following closely to the Crohns and Colitis Foundation, as well as
many Crohns Disease related site on the internet. I will do my
best to make this your one stop info center.
Please add your insite. If you are a medical professional, we would
love your feedback on latest developments. Clinical trials in your
area would also be helpful.
Research and new findings on related studies are held on this site.
There is a map spotting feature that allow you to place a marker
in your city of diagnosis. You can be discreet, first name and year
you were diagnosed or started experiencing symptoms would be fine.
Always, contribute what you know, what you hear, what you think!
If you are newly diagnosed, subscribe to this blog for the latest
developments in the cure and management of Crohns Disease.
Following closely to the Crohns and Colitis Foundation, as well as
many Crohns Disease related site on the internet. I will do my
best to make this your one stop info center.
Please add your insite. If you are a medical professional, we would
love your feedback on latest developments. Clinical trials in your
area would also be helpful.
Research and new findings on related studies are held on this site.
There is a map spotting feature that allow you to place a marker
in your city of diagnosis. You can be discreet, first name and year
you were diagnosed or started experiencing symptoms would be fine.
Always, contribute what you know, what you hear, what you think!
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